Cancer

> Cancer

The need:

Provide support in the management of screening requirements and test results for cancer patients

Specific information related to those needs from cancer patients:

Tracks my symptoms and informs me of tests needed, even books them for me
Tracks tests, including blood pressure, temperature, sleep, mood, appetite
Checks against my weight, size, nature of sleep - so everything seems appropriate
Organises my test results to share with ALL my doctor/nurses and health clinics
Has room for my medical information and records
May conduct tests as well and help avoid biopsies when possible
Keeps me up-to-date with research
Communicates with health professionals
Communicates with people in a similar situation

> Useful information about cancer patients

What do patients involved with cancer want from apps?

61% want to understand more about medical conditions and choices of treatments
46% want practical support (such as care planning)
38% want support at the right time, such as by issuing me with reminders and other information
33% want emotional support
43% want a way of communicating more regularly with the doctor or nurse
40% want to comment (give feedback) on the healthcare services I receive
39% want to be able to track my symptoms/lifestyle/feelings etc and know if I am improving or not
39% want to stop feeling isolated, and want the app to help me reach out to other people
34% want help to raise public awareness about diseases/conditions important to me
20% want the app to be less expensive for me than other forms of healthcare support

What would make patients involved with cancer use apps regularly?

Apps that …

68% - provide trustworthy, accurate information
65% - are easy to use
63% - provide guarantees that my personal data are secure (unless I choose to pass on my data, for instance, to my doctor)
56% - are free
55% - contain no advertisements
43% - work effectively and consistently over time
23% - are not expensive
24% - allow me to network with other people important to me
27% - are packed with detail (I don’t mind complex apps)

The highest price paid for an app by any respondent is US$2,500, but the majority have paid zero

> Let’s not reinvent the wheel...

Examples of apps patients involved with cancer thought were good

Service	Recommended App
Access to clinical schedules	Epic Haiku - only for Epic’s Electronic Health Record
Access to medical records and health clinic	061 CatSalut Respon (in Catalunya, Spain) Hello Health (Canada)
Communicating with people like me	App made by mylifeline.org - seems to have been withdrawn
Exercise	Lose it; myfitnesspal
Heart rate	Instant Heart Rate monitor
Organising treatment and care	My organiser - Macmillan
Finding facilities/services to supportmy quality of life	Toiletten-Finder Apps Erste Hilfe Apps; SmallTalk Oral Motor Exercises
Medical information	WebMd
Nutritional advice	Fooducate
Understanding my condition	Visual anatomy