This project has received funding from the European Union’s 7th Framework Programme for research, technological development and demonstration under grant agreement no 611709
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Need identification with patient association in Somos Pacientes 2013 event
Past november 27th, we celebrated Somos Pacientes 2013, a meeting with patient organizations in which they were able to address the challenges and opportunities in the present and may arise in
the short and medium term for group of patients in Spain.
The Conference, organized by Farma Industria and Somos Pacientes , in collaboration with TICBioMed , took place at the BBVA Innovation Center in Madrid.
The program was divided into three parts:
In the first, a moderate conversation by journalist Isabel Gemio in which the role of the patients themselves and their relatives and carers were analyzed to address the disease opened.
The second part was attended by senior representatives of associations of patients and an expert in social media and cyber-activism and the Patient Advocate Extremadura, D. Peter Shepherd.
Finally, the meeting WAP (web , application, and patients) contacted through four working groups , patients with different technological applications developers to first put on the table the
needs arising in different fields and the latter can provide technological solutions to those needs . The four working groups focused on the following issues: adherence to treatment, disability
and dependency management partnerships and access to treatment .
In the video below you can see the streaming of the day , except for the workshops . From 5:03:20 you can see what the conclusions of the working groups were (in spanish).